Guideline
End of life care for infants, children and young people with life-limiting conditions: planning and management
- Allied health
- Comfort and nursing care
- Communicating with families
- Families and professional practice
- Family-integrated care
- Medical
- Nursing
- Pain and comfort
- Palliative and end-of-life care
- Seizures
- Wellbeing
This guideline is from 2019, more than five years ago. Check whether a newer version exists and which version your unit follows.
Summary
This NICE guideline (NG61) covers planning and management of end of life and palliative care for infants, children and young people aged 0 to 17 years with life-limiting conditions, including neonates. It emphasises involving children and families in decisions, advance care planning, and emotional and psychological support. It addresses management of distressing symptoms such as pain, agitation, seizures and respiratory distress, hydration and nutrition, recognising imminent death, care at home, and bereavement support for families and professionals. It was updated in 2019 to reflect the reclassification of gabapentin as a controlled drug.
Summary written for NICUlearn. Always read the original.
- Licence:
- Summary and link only
Guidelines are shown for education. Follow your unit's own guidance and senior advice.