Guideline · Consensus statement
Recommendations for neonatologists and pediatricians working in first level birthing centers on the first communication of genetic disease and malformation syndrome diagnosis: consensus issued by 6 Italian scientific societies and 4 parents' associations.
- Communicating with families
- Ethics
- Families and professional practice
- Family-integrated care
- Medical
- Postnatal and transitional care
Summary
Intersociety consensus from six Italian scientific societies and four parents' associations on how neonatologists and paediatricians in first-level birthing centres should communicate a new diagnosis of genetic disease or malformation syndrome to parents. It was developed by a multidisciplinary expert panel with parent representation between 2019 and 2020. It sets out strategic principles for the doctor–family relationship and includes a practical summary table for daily use. Themes include communication quality, bioethics, multidisciplinary care and supporting families.
Summary written for NICUlearn. Always read the original.
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- Open (Creative Commons)
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