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Evidence · Research paper

Prevalence of Severe Visual Disability Among Preterm Children With Retinopathy of Prematurity and Association With Adherence to Best Practice Guidelines.

Research paperJAMA Network Open2019Over 5 years oldFull text
  • Eyes and hearing
  • Medical
  • Neurodevelopmental follow-up
  • Nursing
  • Quality improvement
  • Retinopathy of prematurity

This paper is from 2019, more than five years ago. Newer evidence may have been published since.

Summary

Nationwide Swedish population-based cohort study of children born 2004–2015 examining the prevalence of severe visual disability caused by stage 4 and 5 retinopathy of prematurity among very preterm infants. It audits adherence to national ROP screening, diagnosis and treatment guidelines using predefined key performance indicators, judges whether visual loss was avoidable, and assesses health system structural capacity. Severe ROP-related visual disability affected about 1 in 1000 very preterm infants, and non-compliance with best practice was identified in most cases, suggesting many could have been prevented.

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Open (Creative Commons)

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